This past Friday, the National Minority Quality Forum hosted a powerful webinar in recognition of the first annual FSGS Awareness Day (June 10, 2025), spotlighting the disproportionate impact of Focal Segmental Glomerulosclerosis (FSGS) and other rare kidney diseases in communities of color. Moderated by Dr. Britt Weinstock, Senior Director of Federal and State Policy at NMQF and Founding Faculty at Meharry Medical College, the conversation brought together Dr. Cameryn Blackmore, Health Policy Advisor to Congresswoman Terri Sewell (AL-07), and Chef Sachet Walker, a cookbook author and private chef who is also a full-time caregiver and advocate for her son living with FSGS.

From deeply personal testimony to meaningful policy solutions, the panelists explored the barriers to early detection, the devastating speed of progression in diseases like FSGS, and the promise of The New Era of Preventing End-Stage Kidney Disease Act (H.R. 1518). This bipartisan legislation could reshape how we screen for, treat, and raise awareness about rare kidney diseases. Whether you’re a policymaker, clinician, patient advocate, or caregiver—watch the full recording now to learn how you can join the movement for kidney health equity.