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doi: 10.1016/j.cct.2023.107365.
Online ahead of print.
1
, Martina Kamaka
2
, Lori Henault
2
, Mapuana Antonio
2
, Tetine Sentell
2
, Kimberley Spencer
2
, Gerard Akaka
2
, Liana Honda
2
, Damien Hanakeawe
2
, Adrienne Dillard
2
, Puni Kekauoha
2
, Aretha Delight Davis
2
, Rae Seitz
2
, Howard Cabral
2
, Angelo Volandes
2
, Marjorie Mau
2
, Michael Paasche-Orlow
2
Affiliations
Affiliations
- 1 Boston Medical Center, USA. Electronic address: lisa.quintiliani@tuftsmedicine.org.
- 2 Boston Medical Center, USA.
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Lisa Quintiliani et al.
Contemp Clin Trials.
.
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doi: 10.1016/j.cct.2023.107365.
Online ahead of print.
Authors
1
, Martina Kamaka
2
, Lori Henault
2
, Mapuana Antonio
2
, Tetine Sentell
2
, Kimberley Spencer
2
, Gerard Akaka
2
, Liana Honda
2
, Damien Hanakeawe
2
, Adrienne Dillard
2
, Puni Kekauoha
2
, Aretha Delight Davis
2
, Rae Seitz
2
, Howard Cabral
2
, Angelo Volandes
2
, Marjorie Mau
2
, Michael Paasche-Orlow
2
Affiliations
- 1 Boston Medical Center, USA. Electronic address: lisa.quintiliani@tuftsmedicine.org.
- 2 Boston Medical Center, USA.
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Abstract
Advance Care Planning (ACP) is a communication process about serious illness decision making designed to inform patients of possible medical options. Native Hawaiians consistently have low rates of ACP and low use of palliative and hospice care services. Our multidisciplinary community and research group partnered to create I kua na’u “Let Me Carry Out Your Last Wishes,” an ACP intervention featuring culturally tailored videos and are now testing its efficacy. Focus groups and informant interviews were conducted with Native Hawaiian community members to ensure the curriculum honored the history, opinions, and culture of Native Hawaiians. Native Hawaiian culture has traditionally been an oral culture; the spoken word transmitted the mo’olelo, stories, traditions, histories and genealogies, which merges seamlessly with video media. The I kua na’u intervention included multiple educational sessions enhanced with videos (informational and personal). The specific aims are to compare ACP knowledge (primary outcome) and readiness for ACP engagement, ACP preferences, decisional conflict, and ACP completion rates via electronic medical record review (secondary outcomes) in 220 Native Hawaiians over age 55 in: (a) a randomized controlled trial of 110 people recruited from ambulatory clinics, and (b) a pre-post study design among 110 people living on Hawaiian Homestead communities located on lands set aside for Native Hawaiians or assisted living. Our protocol aims to evaluate the efficacy of our video-based educational intervention for Native Hawaiians to support decision making in this community and decrease disparities in serious illness care. Clinical Trial Registration Number: NCT04771208.
Keywords:
Advance care planning; Doctor patient communication; Educational decision aid video; Medical decision making; Native Hawaiian.
Copyright © 2023. Published by Elsevier Inc.
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